Prince and the pea

Cash is now sleeping in his own bed through the night. The secret turned out to be buying him an expensive bed of his own.

Cash slept alone when he was very little, but then got grumpy about the crib and wanted to be with Josh and me. We worked out a routine where he fell asleep with us, and then we moved him to his own bed - which at the time was a cute blue Ikea toddler number with a huge green leaf over it. Sometimes early in the morning, he would wake up and crawl back to us. This routine went on more or less for years, including after Josh left. When we moved to Greenville, he had his own bed, but it was in my room, and it was cheap and flimsy. He abandoned it about half way through our sojourn in Greenville and decided he was supposed to sleep with me. That continued this summer because we were traveling alot, so he really got used to sleeping with me. I figured it would be impossible to get him to go back to sleeping alone. Nope - I bought him a real bed, and voila - there he is all night. So far anyway...

He stayed home from school today. Sniffles. But the doctor said it is not pneumonia, whew.

Harpooned

A whale is only harpooned when he comes up to spout, they say.

I got harpooned after spouting last week.

I wrote about how healthy Cash has been this year, and of course he proceeded to get sick this weekend. His cold has turned ugly, but I'm not yet clear about whether it is just an agressive cold, a touch of pneumonia, or reactive airway. We will take him to the doctor tomorrow. It is a bummer since Aunt Dianne is here, and Cash is pretty listless and not alot of fun.

 

Grateful

Cash has a cold. That is never fun, but at least it isn't as horrible as it used to be. I want to take a moment to appreciate how far we have come - when Cash was little, EVERY cold turned into pneumonia. Either he would have a reactive airway disorder when he came in contact with a virus, or he would fail to move the junk in his lungs and it would get infected. We would try to get him to cough, we would thump his back (later we got a vibrating vest that they use on CF kids), but more often that not, we ended up at the doctor's office getting x-rays. Before we recognized the signs, sometimes that meant being in the ER at 3:00am. When he was very small, they used a machine called a Pigg-O-Stat to hold him still during the x-ray, which I admit I found amusing, though Cash did not. Then they would diagnose pneumonia and we would go home on steroids, antibiotics, and bottled oxygen. Honestly, he got pneumonia and/or reactive airway so often we LIVED WITH an oxygen machine as well as a prescription of steroids in the fridge.

And now a cold is usually just a cold. He hasn't had pneumonia since last December when he was on an airplane for 24 hours. I feel so grateful that we keep moving forward. Someday the diapers will be in the past, right?!

I am about to go email Cash's dad regarding a new parenting plan. Our original plan applied to the time when we were both in Aspen, and the last one was only in effect through this summer. Now that we are settled in Nashville, I hope we can come to a more permanent agreement.

Fun weekend

We had a great weekend with Valerie and Chris. We went to the state fair on Saturday - I think Cash liked the rabbits best. We did not take a stroller, so he walked alot but we had to carry him quite a bit too. We are in an awkward stage with walking. I like him to do it himself so that he gets stronger, but he cannot go too far without tiring or getting bored. I'm over having him ride in a stroller - I think he is too old - but I acknowledge that sometimes one would be helpful.

I also went out in Nashville on Saturday night with Val and Chris. It was so much fun and it made me appreciate this town even more. The scene downtown is fabulous - so many people, so much great music. And then we went to the Titans-Patriots football game on Sunday. I went to the dark side and rooted for the Pats with Chris.

And now Aunt Dianne arrives tomorrow! There is more fun to be had. Opryland, I think!

Cash has a little cold. Runny nose and generally snarfly. He also has a little scratch on his face. It figures that I found out today that tomorrow is school picture day. Of course.

Who

A brief description of Cash never describes him. That's true for all of us, but especially so for him. When I am forced to say only a few words about him, I usually say he is special needs. If someone asks for more detail, I mention that he has pervasive developmental delays - both cognitive and physical, is nonverbal, and is semi-autistic (depending on who you ask). And then I always add that he is delightful. But "delightful" probably sounds like a contradiction to anyone who has just heard the first description, even though delightful only begins to touch on the complexities of his personality and his way of moving through life. At 7 years old, there is no doubt that my little kid is a pretty severely disabled person who is unlikely to ever be "normal" - but I hate even writing that word "disabled" - what I wanted to write was that he is a pretty severely challenged little guy. Challenges vs. disability, you know?

And there is so much more to him than those challenges. A few minutes ago, Mom and I were looking at a picture of him from when he was 1, and there he was - his little personality already shining through. He is charming in the most peculiar way - he is not a quick smiler, he has difficulty with eye contact, he is not a hugger - and yet - and yet - he is utterly charming. Maybe it is just because I am his mother and I am absolutely charmed by him, but I think his smile once it comes is like a reward, his eye contact when you get it is like connecting with his soul, and his hugs, even his touches, are like grace.

 

New life

Yesterday I worked my first full day at the hospital. I am still in training (and will be for a very long time - you will be reassured to know that nobody is letting me program your pacemaker until I have been trained to death), and so I shadowed my mentor all day. It was great - lots of cases, lots of learning. Plus it had the side benefit of wearing scrubs, which are very forgiving if you have gained a few pounds over the last few months...

I came home after work to a house full of boxes. Our movers delivered all our stuff, which had been in storage in Atlanta for the last few weeks. It is nice to have access to all our things, but until I have time to unpack and organize, it is a mess. And I do not like mess. It drives me crazy. But I am trying to tackle small bits at a time and I know it will come together. Eventually.

Cash got his hair cut today. He is doing fine - seems comfortable in the new house, fine with school, generally healthy and happy.

New home

We pretty much spent all Labor Day weekend moving in to our new apartment and buying things to go in it. I find it stressful to make purchasing decisions, so it wasn't as fun as it sounds. Our movers should arrive later this week, and some of the furniture will be delivered next week. In the meantime, it is quiet around here.

Cash is doing well. Right now he is watching Daniel Tame Tiger on PBS Kids on his iPad. I don't know what we did before we got his iPad - he is endlessly entertained by it. Plus I like the way it sneakily helps him learn. I have it loaded with apps about the alphabet and colors.

He has teeth again - no more baby vampire. I was worried about how those big teeth would fit in his little mouth, but there they are.

Aunt Valerie is coming to visit on Friday, and Aunt Dianne will be here in 10 days.