How to donate

Make tax-deductible checks payable to: Help Hope Live, with "In honor of Cash Burnaman" in the memo section

Mail to: Help Hope Live, 150 N. Radnor Chester Road, Suite F-120, Radnor, PA 19087

For credit card donations, please call 800-642-8399 or visit helphopelive.org (enter Cash Burnaman into the Find a Patient field.)
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Thursday, March 29, 2012

Less than 18 hours so far

The eagle has landed in Colorado and been picked up by his grandparents. I miiiiissssss him. And at the same time, I am going to revel in my free time this week. Woo!

Wednesday, March 28, 2012

My heart will be 2 time zones away

I have to take Cash to the airport in 8 hours (at 4am). It is NOT fun. He will be gone 10 days, which is about 9 1/2 days too long for me.

But I am sure he will have a great time with his dad.

A huge thanks to my friend Katie for escorting Cash to Denver. She is a hero for doing this.

Monday, March 26, 2012

When the going gets tough

Cash is just hilarious these days. He is SO responsive. For instance, we were out for a walk and he was whining and messing about with someone's car. I told him if he went to our car I would let him drive. He stopped, looked around, and made a beeline to our car. And that is only one example - he listens and responds with us all the time now.

And he is walking really well now, even without his braces.

He got a haircut on Saturday - short. His scars show, but it is cute. Chrissy at Snip Its is a genius of cutting the hair of small recalcitrant boys.

AD just came home from P'burgh where she has been for a week. It is nice to see her.

There has been some drama for me at school over the last few days. It has been tough, but I am tougher.

Friday, March 23, 2012

Good news and more good news

All kinds of good things to report about Cash:

Yesterday for my birthday, he walked up four stairs alone, using the banister. Laters, he did a new sign ("doctor"), and then he sucked through a straw for the first time at dinner. The straw thing is pretty big - we have been working on that for awhile. All good birthday presents for me!

Also, per Cash's local endocrinologist, he doesn't need growth hormone injections right now - he seems to be making his own. He is still really small (bone age =3 1/2), but if he has enough hormone circulating, then it is up to his body to use it. I wonder - did the stem cells help spur his pituitary gland to kick in?

Also, Cash is now vocalizing on command. Yay to Angela, his speech therapist! If you say "Cash, let me hear your voice", Cash says "mmmm". It is very cute. Also it is the first time he has ever made sounds when asked.

On the downside, Cash still has a cold. It's been a week. But he seems to have started breathing out of his mouth when sleeping when his nose is blocked, thank goodness. I've spent years sleeping next to him while he snarfled and snuffled and tossed and turned all night trying to clear his nose. It is a relief to hear him sleep relatively quietly even with a cold.

I had a nice bday - massage at the Grove Park Inn in Asheville and lots and lots of Hunger Games.

Monday, March 19, 2012

Fly boy

After an insane amount of negotiating and airfare-hunting, Cash is going to see his dad for spring break next week.

Thursday, March 15, 2012

Bits and pieces

Cash got a virus on Tuesday night - a high fever that wouldn't respond well to meds. He's still sick today, but seems to be getting better. Between the two of us, we have been pretty sicky recently.

Josh and I are trying to work out plans for spring break. It is a challenge.

Did I write that last weekend Cash and I went to visit our friends Elizabeth, Bill, Silas, and Anna Dunn? We had dinner at their house in Spartanburg - tremendous fun. Cash was quiet, but he liked their indoor swing and their musical toys and their fish and their computer and their keyboard. Plus, Anna Dunn made him laugh. Plus, we had a dance party to finish off the evening. It was totally lovely. Cash really introduces me to the nicest people.