Cash goes to preschool and he takes physical, occupational, and speech therapy. We love Cash as he is, but we want him to have every opportunity to reach his potential.
And to that end, Josh and I have decided to take Cash to India for stem cell treatment this winter!
I got excited about this idea in August after speaking with Amanda Boxtel. Amanda has visited Dr. Geeta Schroff in New Delhi numerous times over the last few years. Since receiving stem cells, Amanda has increased sensation and bladder control. We believe stem cell therapy will help Cash because he has hypotonia (low muscle tone). Because Dr. Schroff’s experience has shown that stem cells have helped improve the condition of paralyzed muscles, we believe that they will help improve Cash’s muscle tone. Though Cash has other issues such as asthma and developmental delays which may benefit from stem cell treatment, we are focused on a reduction of the hypotonia as a reasonable treatment outcome.
Treatment consists of injections of stem cells, along with intense physical therapy, all under the supervision of a doctor who has been practicing this therapy for 10 years without negative side effects. Cash will need to be in India for two months for the initial treatment with additional future treatments planned. The total cost is likely to exceed $100,000. More on that later -
Our goal is to improve Cash’s quality of life. We are not looking for a miracle cure – Cash is who he is – but we would like to make his life better. When Cash’s muscle tone improves, we expect improvements in his ability to walk, potty-train, and perhaps communicate (since core stability is crucial to both sign language and speaking).
Cash is a fabulous person – and he deserves a chance to reach his full potential. India, here we come!