How to donate

Make tax-deductible checks payable to: Help Hope Live, with "In honor of Cash Burnaman" in the memo section

Mail to: Help Hope Live, 150 N. Radnor Chester Road, Suite F-120, Radnor, PA 19087

For credit card donations, please call 800-642-8399 or visit (enter Cash Burnaman into the Find a Patient field.)

Wednesday, February 2, 2011

New kid on the block

Cash is back on point. He will get his stem cell injection tonight. He went to this morning's therapies but, although he was feeling fine, Dianne and I decided to let him rest more this afternoon. Tomorrow he should be back to a full day.

We met the most adorable little girl today. Her name is Nehal. She is four years old and has a chromosomal deletion. She has some of the same characteristics (a bit disengaged when meeting new people) and faces similar challenges as Cash, although she has begun to walk recently. We had a long conversation with Seeme, Nehal's mother, who said the family lived in Colorado Springs for a while in the late 90s. They now live in Bangalore, India's Silicon Valley, and I think they may work in the technology field.

I watched some of Nehal's PT and she seemed to have a similar avoidance strategy to Cash. However, where he tries to go limp and unresponsive, Nehal was screaming as loudly as she could. When the therapists paused, she stopped. Her technique did not work out any better than Mahatma Cash's non-confrontational protests.

We look forward to getting to know them (Cash has not officially made Nehal's acquaintance) and to watching their progress. This was Nehal's first day.

No comments:

Post a Comment