How to donate

Make tax-deductible checks payable to: Help Hope Live, with "In honor of Cash Burnaman" in the memo section

Mail to: Help Hope Live, 150 N. Radnor Chester Road, Suite F-120, Radnor, PA 19087

For credit card donations, please call 800-642-8399 or visit (enter Cash Burnaman into the Find a Patient field.)

Thursday, September 13, 2012


Cash has a cold. That is never fun, but at least it isn't as horrible as it used to be. I want to take a moment to appreciate how far we have come - when Cash was little, EVERY cold turned into pneumonia. Either he would have a reactive airway disorder when he came in contact with a virus, or he would fail to move the junk in his lungs and it would get infected. We would try to get him to cough, we would thump his back (later we got a vibrating vest that they use on CF kids), but more often that not, we ended up at the doctor's office getting x-rays. Before we recognized the signs, sometimes that meant being in the ER at 3:00am. When he was very small, they used a machine called a Pigg-O-Stat to hold him still during the x-ray, which I admit I found amusing, though Cash did not. Then they would diagnose pneumonia and we would go home on steroids, antibiotics, and bottled oxygen. Honestly, he got pneumonia and/or reactive airway so often we LIVED WITH an oxygen machine as well as a prescription of steroids in the fridge.

And now a cold is usually just a cold. He hasn't had pneumonia since last December when he was on an airplane for 24 hours. I feel so grateful that we keep moving forward. Someday the diapers will be in the past, right?!

I am about to go email Cash's dad regarding a new parenting plan. Our original plan applied to the time when we were both in Aspen, and the last one was only in effect through this summer. Now that we are settled in Nashville, I hope we can come to a more permanent agreement.

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